Day 4 was discharge day and was by the afternoon had turned fairly chaotic. There have been some members of the family who haven’t been feeling 100% and this Mama was concerned that some post op aches and pains may be a sign of more than just surgery side effects. The OB agreed that because the flu was making it’s rounds through the hospital it was important to run a swab just in case.
This small decision held the fate of my discharge in it’s hands and took over 5hrs for the results to be returned. The it was a hustle to get everything together when the results came back negative. Oh, how could I forget we hadn’t quite come to a 100% decision on a name and had to turn our Birth Certificate in before discharge.
We sat down, finally made a decision and turned in our sheet officially naming baby boy…Jackson!
As we were tiring up loose ends and getting everything ready for the car, we made one more visit to our little guy before heading out. He had made such huge strides but did get moved back into an isolette because he was struggling to hold his temps but was still looking great on his oxygen levels and was being very consistent with tolerating his feeds. It was a good day in the NICU! Now it was time to get home to Big Sister and it was already close to 6pm.
We got in the car and pulled off. This is where I lost my composure. I had been focusing on the excitement of getting home to my baby girl but the reality that this meant I had to leave my baby boy behind was overwhelming. Deep down I know this won’t be the marathon NICU stay we’ve experienced in the past but leaving the hospital with things and leaving behind such an important part of you, in the hands of strangers…highly skilled strangers but strangers nonetheless…is devastating.
We came home to balloons and flowers, homemade food and lactation cookies and the most heartfelt NICU care package. It’s so helpful to be surrounded by the support of family and friends on such a difficult day. Our care package from a fellow NICU mama (Jackie from The Cronin Connection http://croninconnectionblog.blogspot.com/) included a personalized box with Jackson’s name, a tee shirt for the little guy and big sister, hand sanitizer and lotion, a camera to leave at the bedside in the NICU for nurses to take pictures while we are gone and a framed picture of the first time Jackson and I did “kangaroo” care together. It was exactly what I needed in that moment and I’m so grateful for those simple little items and most importantly the thought that went into them.
Day 5 we oke up and went into our first return day to the NICU and got some great news about progress! They lowered the oxygen levels to 2L of flow on the cannula and raised his feeds to “full feeds” which is 30mls (1ounce) every 3 hours. The meant the were able to cap off and discontinue the lipids and vitamins being administered via IV. This makes us very happy because his most recent IV spot is in his scalp which we are more than ready to see that be removed. If he tolerates his feeds we may be able to start bottle feeding by tomorrow which is a huge step closer to going home! We also need this little guy to start holding his temperature on his own. He’s currently down to 4lbs9oz after a 1/2 ounce gain on day 4. We need to see that number start climbing as well.
But all in all, fantastic news for our little champ!